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MAC & Bronchiectasis | Last Active: Mar 5, 2023 | Replies (43)
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Replies to "I also thought you might get tested for CF. The test is expensive and might not..."
Someone wrote a few months ago about wanting to cry each time they start the daily airway clearance. I can relate to that. This group has made me realize that the amount of time I am spending is excessive. The Respiratory Therapist told me to use nebulizer for 10 minutes and STOP!! I would have died from not being able to breath months ago, if i had followed her instructions! She also works in the Peds. clinic part of the time.
No! I have not been tested for CF gene, but I will contact the pulmo in UNC_CH and ask about that since she sees children with CF in the Peds. clinic.