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Medication for reocurring lung infections

MAC & Bronchiectasis | Last Active: Jan 3, 2023 | Replies (10)
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@irenea8

I don't know how sputum testing works exactly. I had assumed the samples I provided tested for anything I might have but apparently not. I know they take a very long time to process when they are testing for MAC. At one point I asked my pulmonologist if I could possibly have Pseudomonas and he only then ordered a specific test for that. Turns out I do have it with a chronic form and may have had it for a long time. Either that or I developed it after being put on Augmentin for 4 weeks. I asked him why he had not tested for it before and he said because it is rather rare. Anyway, it is good to ask questions about your sputum tests etc.

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Cathln | @Cathln | Jan 2, 2023

I ask. Dr didnt tell me about Klebseilla. I was terrified. I asked..Was told its just there causing no harm! Til it makes you sick Pseudoamonia (sp) same! He finally treated Pseudo, but it took him 3 months. After that mess with him, I went toNJH again..I know whats wrong and what isn't now. I also got a new Pulmonary. But, I ask about every test I have done... It may be rare,but my doctor says it has a habit
of returning. So ask about everything!

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fdixon63 | @fdixon63 | Jan 2, 2023

Interesting irenea8. I'm surprised your doctor did not do basic sputum testing to see what you might have. I had a bronchoscopy 5 years ago because of months of dry coughing and it revealed MAC and pseudomonas. The pseudomonas has continued to be positive except for a few months along the way. I was initially offered the option to suppress it or eradicate it. I said I wanted to eradicate it. They put in a PICC line and three times a day my husband helped me do 30 minute IV application for weeks. We were so happy to have gone through that to rid my lungs of that bacteria. It did not turn out the way we hoped--I still test positive. So now I continue with inhaled Levalbuterol, inhaled Tobramycin twice a day nebbing with 3.5% HyperSal. At this point it appears that this is my life going forward. Just so glad I've got a good support system in my husband. No other family around. The very best to you.

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