@sheilad1 can you tell us your DEXA scores at each stage and also whether you are post-menopausal?
Your story is pretty unusual so details would be appreciated. As an above poster said, bone loss is physiologically "natural" after a certain age.
I did not take meds for years (14 to be exact) after my first diagnosis and also did 5 years of hormonal cancer meds that caused more bone loss. I wanted to take meds and tried several, even tried an immunologist to get on Forteo. My doc did not want to prescribe Reclast or Prolia due to other health conditions. I also met with Dr. Keith McCormick whose book on "Whole Body Approach to Osteoporosis" is well-regarded. I eat well, walk and do tai chi and take the usual supplements.
I ended up with 7 spinal fractures. Noone wants that pain and disability so I hope people will consider meds when needed. Thank heavens for Tymlos, which has an adjustable dose so I could start low and ramp up. It's been 16 months. This past week I walked 10 miles two days in a row. Before Tymlos, I was in bed.
My doc will cautiously follow up with a partial dose of Reclast (1/4) to see if I can handle it. He says I can lock in gains and take breaks from med. At that point I will go back to Dr. McCormick.
I am 74. Menopause at 50. Scores attached. I did upper body strength training. Lower body walking. Added ankle weights after 2nd scan and see how the hip improved in 2 months. NOTE I had. TBS score which tests bone quality. Doctors are starting to see that that is more important than bone density. For example, our bone density increases after we’re born and we are at 90% by the time we are 15 years old. Young children have low bone density. But they don’t break a bone when they fall as a rule. Because their bones are soft the quality is good. What we need to watch out for our brittle bones. So if you have poor bone density, but good quality, then talk to a Doctor Who understands that because you may not have a high fracture right. Bone density alone is not the best measure of your chances of a fracture. You also need a CTX blood test. That will show if you are losing density quickly and if you’re not, you’re in good shape also, depending on your other tests. It is not easy to find someone who does the TBS Score. It is just a software that is added to the DEXA scan but it’s just not in a lot of offices. Mostly just in hospitals and even then not a lot of them. This is a link to help you find one. I don’t believe it’s complete, but I don’t know how else to find someone who has the software.
http://www.medimapsgroup.com/