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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@tsc

Hi @marmak, I'm so glad you caught the GCA fast. I had symptoms of GCA a few months before diagnosis, and PMR maybe 9 months before that. After biopsy was positive for GCA, I started on prednisone 40 mg, tapering down by 5 mg every two weeks. It went pretty well. I only had to go back up to the previous dosage once when tapering. I've been off prednisone a few months now. I have odd pains here and there, but am much better than what I was.

My worst side effect while on the high dosage of prednisone was insomnia. My appetite returned as I'd been anorexic with PMR and GCA, but I watched what I ate. I also have osteoporosis, but that started before the prednisone.

I wish you the best. My mother-in-law was diagnosed with GCA in her 80s and lived to be nearly 100.

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Replies to "Hi @marmak, I'm so glad you caught the GCA fast. I had symptoms of GCA a..."

What a terrific outcome. High dose prednisone causes hypertension in me, so I've been watching my BP which is now about 30 points higher than normal. Was on a taper for my pmr which I've had almost 6 years now. Tolerated a good deal of pain in my quest to get off it. May have been unrealistic. Am currently having no pain and loving it.