← Return to Relapsing Polychondritis
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Autoimmune Diseases | Last Active: Mar 25 12:23pm | Replies (39)
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← Return to Relapsing Polychondritis
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Hi.
I have had a RP diagnosis for 8 years. (Sjogren’s 3 years) My GP and Rheumo doctors both saw me in an ear flare. Additional testing helped with the diagnosis. I’ve controlled it some with diet, Antihistamines, short tapers of prednisone, Meloxicam, but had to stop Meloxicam due to digestive issues.
The last year has been much harder and Gp recommended seeing a specialist( like there lots of RP specialists out there?) Mostly I just fight through the pain. I have been reluctant to start any meds though I know damage may be occurring.
I noticed you said you went to Duke University for treatment. I’m looking for someone at UNC or Duke that may have actually have RP patient experience, though I know we are all so different. Would you mind sharing the rheumatologist you see at Duke?
Best wishes in your journey.