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Jewish hospital appt

MAC & Bronchiectasis | Last Active: Mar 5, 2023 | Replies (43)

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@sueinmn

That is quite a regimen! How does the Netipot helps if the mucus is in your lungs?

I too have arthritis - pretty much everywhere - and find chair yoga with many bending poses as well the the good old "downward dog" to help move the mucus when walking hurts too much.
Have you been tested for CF genes, since even using so much saline the mucus remains thick?
Sue

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Replies to "That is quite a regimen! How does the Netipot helps if the mucus is in your..."

I also thought you might get tested for CF. The test is expensive and might not be covered but sounds like you should consider it. I had the test and mine came out negative. Has your pulmonologist considered putting you on Pulmozyme? It is helpful for those with CF that have very thick and difficult mucus. Some say it is not recommended for Non CF Bronchiectasis however. I asked my Pulmo about that and he said it was based on only one study and that they have found it helps some people with Non CF Bronchiectasis. It is very expensive and also may not get covered. I spend about one and a half hours on airway clearance a day and i think that is more than average. So 4 to 5 is a lot.

Sue, I also have chronic post nasal drip. ENT and the Allergist have Rx. 3different nasal sprays. Each helped with the sinus drainage but all cause chest tightness and difficult breathing Azelastine HCl; Mometasone Furate;
Irpatroplum Bromide; and I have tried over the counter nasal sprays (Fluticasone Propionate). I have also tried
Xlear Nasal spray but that makes my nose bleed after about 3 days.
Nettie pot using filtered and boiled water and saline packets 2 or 3 times a day helps wash out the mucus from my sinus. It is sometime depressing because no matter how much time I spend cleaning the head and he lungs, the amount of mucus does not diminish,

I also have hiatal hernia with GERD
Head of Bed on blocks about 6" and no food or beverage for 3 hours before going to bed and avoid acid foods and beverages.