@sheilad1 can you tell us your DEXA scores at each stage and also whether you are post-menopausal?

Your story is pretty unusual so details would be appreciated. As an above poster said, bone loss is physiologically "natural" after a certain age.

I did not take meds for years (14 to be exact) after my first diagnosis and also did 5 years of hormonal cancer meds that caused more bone loss. I wanted to take meds and tried several, even tried an immunologist to get on Forteo. My doc did not want to prescribe Reclast or Prolia due to other health conditions. I also met with Dr. Keith McCormick whose book on "Whole Body Approach to Osteoporosis" is well-regarded. I eat well, walk and do tai chi and take the usual supplements.

I ended up with 7 spinal fractures. Noone wants that pain and disability so I hope people will consider meds when needed. Thank heavens for Tymlos, which has an adjustable dose so I could start low and ramp up. It's been 16 months. This past week I walked 10 miles two days in a row. Before Tymlos, I was in bed.

My doc will cautiously follow up with a partial dose of Reclast (1/4) to see if I can handle it. He says I can lock in gains and take breaks from med. At that point I will go back to Dr. McCormick.

Thanks for posting. I have vertigo, and so far, I’ve tried two oral drugs for osteoporosis, and both made me very dizzy. I’m afraid to get injections, for fear that I’ll have prolonged dizziness that I can’t reverse. For now, my doctor suggests vitamin D supplements and exercise, until my next DEXA, which is 6 months away. I will try to increase my intake of frites and veggies as well.

Thanks again.