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Thyroid cancer with distant mets at diagnosis

Thyroid Cancer | Last Active: Jan 1, 2023 | Replies (18)

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@carolinanurse

Happy New Year everyone!
This is another update. I just got out of the hospital yesterday. I had to have emergency surgery to evacuate a huge hematoma that collected almost a week after my thyroidectomy. I am doing much better now but still have a drain. I had my PET scan while in the hospital. Both of my lungs have metabolically active cancer and in addition my left lung pleura has several malignant lesions. We don’t have pathology back yet, but I did speak to an oncologist who let me know that pleural metastases are a grave event and the cancer will not be curable. If the genetics come back with the RET mutation, there is a clinical trial that may give me a few years. Otherwise I may be looking at a rather short journey. I am feeling blessed to be home tonight with my loving husband. I will fight this with whatever treatment they offer because I have beaten terrible odds before!

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Replies to "Happy New Year everyone! This is another update. I just got out of the hospital yesterday...."

I’m so sorry to hear you’re going through so much! Do you know if the lung malignancies are metastatic thyroid cancer or lung cancer? I’m most familiar with thyroid cancer as that is what I have but I know there are new treatments available for both that were not around only a few years ago especially if you have a mutation. I can’t stress how important it is to get a second opinion even if it only confirms what you’ve already been told. At least then you can be comfortable with the treatment decisions that you’ll be making. I’m very lucky to live in north Jersey so I have quick access to Sloan Kettering. I highly recommend going to a similar cancer center if you’re able as they are best equipped for treating cancer and you’ll have access to the latest in treatments and clinical trials. As I mentioned in an earlier post I had my surgery at another hospital in New York City and when I asked the oncologist there if I had a chance of surviving my cancer his answer was “Well everyone dies sometime.” It was a very cold and uncaring response. My experience at Sloan Kettering has provided me hope. It hasn’t been easy but my response to treatment has been remarkable. You said in your post that you’ve beaten the odds before. Anything is possible!