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msk (@msk)

Jewish hospital appt

MAC & Bronchiectasis | Last Active: Mar 5, 2023 | Replies (43)

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@raney

She responds promptly and orders meds, text, etc promptly
My concern is the difference in the overall needs of each group
Peds vs geriatric. I think she may be fairly new because she is not pictured (listed) on the web site with all the other docs in the Pulmonary Specialty Clinic.
I am wondering if I am getting the best treatment. I am still spending 4 to 5 hours every day getting the mucus out of my lungs . Clear and very thick.. Sputum culture in Sept just showed the fungus that causes thrush

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Replies to "She responds promptly and orders meds, text, etc promptly My concern is the difference in the..."

Well, my pulmonologist treats me, 2 daughters and my grandson - and I believe she does a very good job with each of us. I guess I wouldn't see it as an issue, especially as she is affiliated with some of the best docs for your condition.

Of more concern to me is "...still spending 4 to 5 hours every day getting the mucus out of my lungs . Clear and very thick.. " Even at my sickest & worst, it never took 2 hours a day to do airway clearance.

What steps are you taking to thin the mucus? Are you exercising vigorously at least once a day? (it really gets that stuff moving!)

Sue

Hey Raney
I go to UNC as well, and you are probably seeing a”fellow”. This is a teaching hospital and a fellow is like an intern of sorts. They have to work under a specialty doctor for 2 years I think. I started out with one as well and then switched because of complexities of MAC and definitely wanted someone with knowledge and experience. However, with that being said- Mary Daniels IS one of the best in the field. I couldn’t get an appt with her so referred to a colleague. So if she is following your fellow you are in good hands!
Blessings,
Dee

4 to 5 hours every day? I've been to Denver and being treated at mayo currently; I've never heard of anybody taking that much time for airway clearance.