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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@tillysam

You are tapering too fast. As mentioned before, this is not a race.

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Replies to "You are tapering too fast. As mentioned before, this is not a race."

Not sure if that was directed at me, but saying this isn't a race comes off a bit patronizing and isn't particularly helpful. I'm not trying to be unpleasant at all, but of COURSE it's not a race - however, balancing the negatives of pred with the incredible negatives of PMR is different for everyone and we all have to figure out what that balance is - hopefully with the specific experience-based advice from those that have been dealing with this longer than those of us who are just learning. As I will share my experiences for others to hopefully get something out of.

That said, per my rheumatologist I'd been tapering from 40 mg at the reduction rate of 5 mg per month. So a month at 40, a month at 35. At 30, with no change in pain levels, I decided to try dropping 5 mg after 2 weeks instead of 4. Which is why I asked the other person here that had tapered from 60 what their rate was.

Again, we all have to apply these data to our own situation. No one knows, from a post, my age, weight, pain level, experience or anything else; I have those data and need to try my best to contour my treatment and taper to those factors. My hope is to get help and learn from the experiences of others as I do.