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HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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@newtonguecancer

Hi I was positive for HPV 16 cancer that was in my tongue it was considered stage 1. They removed the primary tumor and then additional area on side of tongue that had moderate to severe dysplasia. The biopsy report from the initial cancer sugery revealed positive for hpv 16 and no spread to blood or lymph but some perineural involvement. I saw drs at Sloan Kettering, John’s Hopkins, and the University of Rochester. Of all of them only the one at Sloan Kettering recommended to take the lymph nodes out right at the same time of tongue surgery. Now today I went in for an appointment and he determined that I had a swollen lymph node that was concerning. Now I don’t know what to do next? Should I go to Sloan Kettering for neck dissection since it appears his idea was right and he does a lot of neck dissections ? I called today and they could get me in next Friday and ideas would be appreciated, it’s just crazy how it was undetectable in pet scan and even from the biopsy but there is a chance it could have still spread to my lymph nodes. Should neck dissection be automatic for people with oral cancer ? What should I do next ?

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Replies to "Hi I was positive for HPV 16 cancer that was in my tongue it was considered..."

You will have to reflect inward, and have solace that you can move forward with and still make peace with yourself. For myself, HNSC base of tongue (PCR16 positive) 8.5 weeks of chemo and radiation. Mine was inoperable, but they left me with a lot of collateral damage. After all the treatments, they told me when/if it came back, I would be facing complete removal of my jaw and a portion of my throat. I have prayed long and hard and made peace with myself and my maker. I did the chemo and radiation for my wife of 36 years. This time I will leave it in God's hands, as he will never give us more than we can handle. God is always with us.