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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)

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@dria

I'm an African American female and I was diagnosed with MP March 2015. Absolutely no one understands the pain or fatigue I feel every single day and I don't want to feel like I'm complaining when I say I'm hurting or tired everyday but I am.

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Replies to "I'm an African American female and I was diagnosed with MP March 2015. Absolutely no one..."

Hi @dria, and welcome to Connect; so sorry to hear about what you are going through.

bertbiz is right: you are not complaining, just stating how you feel. You have come to the right place, because here you will find many other members who share your pain and can offer support.

I would also like to bring in @mardellepoff, @miker46@billymac65, @mommasaid, @vdouglas, @doron, @ngilson, @billindc, @gmeg; I hope they will share their experiences with you.

dria, could you tell us a little more about yourself? Have you found a doctor experienced in treating MP? Are you undergoing any specific treatment?

Sorry you are part of this group. This is a great place to find support as everyone is fighting the same battle. My husband has MP, was diagnosed in May of this year. Since then, we have had his PCP say it was a "controversial" diagnosis, and his GI not really believing it. The PCP even told ME to do the research and let him know what I find. I started contacting doctors and found one doctor in Baltimore who would treat him (had one other patient), but then our insurance changed and this doctor is no longer in network. Currently fighting to get him seen for continuing care (found an case manager to help). Unfortunately, with this disease you need to be your own advocate and researcher. Best of luck. We are hear for you if you have any questions.