Replies to Hi – you're one of the few people that have talked about starting at high doses,…

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Polymyalgia Rheumatica (PMR) | Last Active: Feb 28, 2024 | Replies (313)

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@analog

Hi - you're one of the few people that have talked about starting at high doses, as I have (though not quite as high). I began at 40, then dropped 5 at a time every 4 weeks, but it still feels like WAY too much.

So after only 2 weeks at 30 I dropped to 25 (where I've been for a few days now with almost no issues). I know that final 10 can be a real grind, but I'm hoping to taper a bit faster than 5 per month. Can I ask you what rate you tapered from 60 and what issues if any you ran into on the way (before the struggles you're currently enduring - I'm wondering about the bulk from 60 to 10)?

Thanks so much.

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Replies to "Hi - you're one of the few people that have talked about starting at high doses,..."

lindaf49 | @lindaf49 | Dec 30, 2022

I went down 5mg every week, until I was at 15mg. I was at 15mg for 1 month. At 12.5 mg for 1 mo. Than starting with 10 mg I would go down 1 mg a month. I was determined not to have to go up on the prednisone, so when weaning down, for the first week I would alternate days by lowering by .5 than the scheduled dosage than up .5 and so on. That way if I had any kind of flareup it wouldn’t last but just a few days. This past week I’m heading to 4mg. I’ve been doing 5mg, 4.5mg, 5mg 4.5. On Sunday I will start 4 mg. So far so good.

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