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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@msvivian

This is a message from me to anyone who has posted on the Mayo Clinic discussion site in regards to either Mesenteric Panniculitis or Sclerosing Mesenteritis. There is a very active support group on Facebook under the name of "Sclerosing Mesenteritis" with approximately 277 members, give or take. The site shows a picture of blue ocean water with some rocky coastline on each side. You can look up the group on Facebook to try to join the group. The group is very supportive and helpful. Some of the members have been to the Mayo Clinic. Our members are from various states across the USA as well some from Canada, Australia, the UK and a few other countries. My name is Vivian and I am member of this group as I have this disease. You cam PM me if you want more info but I am not in control of adding people to the group. Good luck to all of you with this disease! Take care. Vivian

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Replies to "This is a message from me to anyone who has posted on the Mayo Clinic discussion..."

Hi Vivian, There is great synergy between forums like Mayo Clinic Connect and facebook. I appreciate your making Connect members aware of yet another option to meet people. You'll note that I've edited your email to instead direct members to private message you. To keep members safe, we recommend sharing personal contact information by private message which is secure from unwanted spam and trolls.

Vivian - how are doing? How have you been managing with the symptoms of MP and/or flare-ups?