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Jewish hospital appt

MAC & Bronchiectasis | Last Active: Mar 5, 2023 | Replies (43)

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@msk

I am still on the 3 meds. Started arikayce one month ago. Had to stop for a week due to loosing my voice. Began again 3 times a week vs 7 days. Its better. I do get side effects- fatigue, coughing-mild, some hoarseness and joint pain.
This med is very expensive and i did not meet the threshold for the copay program. With my doctor we decided to do 1 more month. Will see what njh says when i go in march.

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Replies to "I am still on the 3 meds. Started arikayce one month ago. Had to stop for..."

It is next step for me and I am very fearful of cost and side effects. I see new pulmonologist on Jan 10
I take a trial drug( clofazamine )vs Rifampin which I am allergic to Have had to stop twice since October due to Pseudomonas and recently pneumonia and influenza A to switch antibiotics Hoping Arykace will be the answer as it treats both MAC and pseudomonas Thank you for your reply