Thank you. I just sent a message to Billindc. Hoping we can connect and exchange info.

I'm going to try a third GI doc in DC and if concerns aren't addressed, book an appointment with Darrell Pardi up at Mayo in Rochester. Dr. Pardi looks to be North America's thought leader on MP. My GI doctor here is of the opinion that if it doesn't look like lymphoma, go home and don't worry. Take some Zofran and call him if I need prednisone. I think they underestimate the discomfort, bloating, acute pain, etc. It's simply not a very well understood disease and I think most MDs are frustrated as well and probably do not want to admit they are just a little bit stumped. I think Darrell Pardi is the man to see if you want the final word.

Thank you, @billindc . I guess we are all trying to find our way through this.

Bill in dc - you may want to check ahead of time if pardi is seeing any Sm/mp patients right now or at least new ones.  We have a private group of 260 members (ages range 2-80) with sm/mp now and a handful have gone for appts at mayo mn thinking they were having appts with both Drs. Pardi and Schaffner and they didn't and saw others. Not sure if that's a temporary thing or not????? Or what the reasoning was???? Or if they misunderstood on who they were seeing, but all lately thought they had appts with them and then didn't.  Maybe check ahead of time??? Just some thoughts. 🙂 we have a handful of members in the dc area. <br>Lisa Daughter w/SM diag. Age 14<br>If you or others are interested in the private group as well, you can pm me for info.

Mayo Clinic gets more requests to see patients with mesenteritis than Dr. Pardi can see himself. We have a team of expert doctors experienced in treating patients with this diagnosis, who work collaboratively at each of our 3 locations: Rochester, Florida and Arizona. Many of them have done research with Dr. Pardi on mesenteritis. Dr Pardi's colleagues often consult with him, especially with extraordinary cases.

Due to the large number of requests for appointments we get for mesenteritis, our physician experts review the CT scans of each patient prior to their traveling to Mayo Clinic. Their review helps them to determine whether to offer an appointment. For patients with minimal findings on CT scan, we may suggest seeking care locally. It is our goal to provide the best care each patient needs, however we do not want to have you incur additional costs for evaluation or travel if we do not feel we can offer care that is different from what you’re already receiving or can receive locally.