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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)

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@colleenyoung

Glad you found a work-around. It is a usability problem with the new design. I've alerted the tech team to insert a reply window at the end of the thread. To add a new message, you have to click REPLY under the original post, which is a problem, especially with long threads like this one. We'll get this fixed in the next couple of days.

In the meantime, @bertbiz tell us a bit about yourself.

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Replies to "Glad you found a work-around. It is a usability problem with the new design. I've alerted..."

Well, Colleen, I was diagnosed with Mesenteric Panniculitis on Friday, May 20th. It was quite a surprise for everyone, the doctors included. I started on Prednisone on Saturday. I went in for a glucose test today and my glucose was high. So tomorrow I get to do a fasting glucose test and then go eat something and come back and do another glucose test. I was diagnosed by my Primary Care clinic and physicians. I will be seeing the GI people June 6th. I'm oddly calm. I figure I can only take this one step at a time. I've done some reading up on it, but not a ton as to not scare myself too much. So far the pain has subsided a bit. I'm eating again. Never had any vomiting, diarrhea or constipation, just pain. Sometimes severe pain, sometimes a dull deep ache. Hard to pinpoint where the pain was or why it moved from place to place in the band below my bra line and above my belly button. I had been to 3 different doctors with no result. Finally I insisted on being seen last Friday and also insisted on a CT Scan. I had my first appointment at 8:15 AM on Friday, had my CT by noon and my diagnosis by 4:00. It was such a relief this "thing" had a name finally. I cried for a lot of reasons. Relief, anger, frustration. So I will take this process in increments. I will start with the Prednisone and see what happens. I'm very lucky my friends look out for me. A friend of mine found this support link. I'm grateful you guys are here. I'll look forward to seeing everyone's progress, stories, successes, frustrations. I will also be grateful for any advice. Thank you.