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Prednisone and Pain

Polymyalgia Rheumatica (PMR) | Last Active: Feb 1, 2023 | Replies (111)

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@johnbishop

Hello @cramsey, Welcome to Connect. Sorry to hear you are having to deal with the PMR pain. I'm not a medical professional but I've had 2 occurrences of PMR and the treatment for both was starting at 20 mg prednisone slowly tapering off as my pain would allow. The first time it took 3-1/2 years to taper off. The second time it took me 1-1/2 years to taper off. If my PA would not prescribe the prednisone and it were me, I would seek a second opinion from a rheumatologist and not a GP with little to no experience with PMR (just my opinion). I also would recommend keeping a daily log with your level of pain when you wake up along with the dosage of prednisone for that day.

Here's some treatment information that you might find helpful.
-- Polymyalgia rheumatica: An updated review:
https://www.ccjm.org/content/87/9/549

Are you able to get a referral to see a rheumatologist?

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Replies to "Hello @cramsey, Welcome to Connect. Sorry to hear you are having to deal with the PMR..."

Thank you so much! Yes, I can get a referral. We chose to get only Major Medical on my wife's Insurance and we pay this P.A.a monthly fee to save $ on the little stuff. It's usually a good deal, but this circumstance is different. Curtis Ramsey
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I strongly concur with John’s advice. Seek a new doctor that will help treat the disease because you will not get better just toughing it out. The pain log will be good for your doctor to help them understand the level of discomfort but your C-Reactive Protein and Sedementation rate should also help to paint that picture. Hopefully your doctor has been testing that. I hope you can get the help you need quickly because I know your pain must be unbearable. ❤️