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DiscussionMesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Replies to "I was diagnosed with MESENTERIC panniculitis from 2 ct scans this past year 2015. I have..."
To "royal" in Pensacola, Florida: I am sorry you have this disease. I am
from Michigan and I have it too and I have many of the
same symptoms as you. You may find it quite helpful to join a very
supportive and helpful private Facebook support group called "Sclerosing
Mesenteritis."
In order to join you can private message Lisa Schwart from Tulsa, Oklahoma. You can private message her and she can add you into the group.
You can also send in a friend request to Lisa Schwart (the photo is of two
women, herself and her daughter) and then you can message her to join the
Sclerosing Mesenteritis Facebook page. I hope that you can find successful
treatment for this disease.
Sincerely,
Vivian
Hi @royal! Welcome to Connect. I'm sorry to hear about the difficulties in your journey to find answers. Hopefully this forum will provide some support! Just an FYI, if you were interested in trying to get an appointment at our Jacksonville location, you could call 904-953-0853 to see if we have any doctors that could help you find some answers!