I was diagnosed with ADH/LCIS after biopsy just before Christmas. I saw a breast cancer specialist and am scheduled for lumpectomy in a few weeks. I have had genetic testing a few years ago (which the type I had didn’t tell where I was on the hormone receptive bell curve for my check 2 positive genetic marker). Dr wants me to get another genetic test by Myriad or Miriam (I think that is the name?) Supposedly this will tell doctor whether taking a mini tamoxifen (5mg) or regular 10 mg tamoxifen will be appropriate course of action for 5 years as well as having the 6 month alternating 3D mammo and mri plan in place. I had a conference call with a high risk breast cancer counselor who ran my numbers on potentially getting breast cancer. Based on my family history, biopsy results and genetic check 2 marker, they tell me I am at a 63.3 % chance to get breast cancer in my lifetime. I have been praying and constantly in deep thought about getting a prophylactic mastectomy to give myself a 99% chance I won’t get breast cancer. I have a 15 year old and am 52 years old. Based on what I’ve been through, cost, stress, time, worry over the past 3 weeks, I’m weary imagining the remainder of my life with the watch and wait and careful screening approach. Hubby thinks I’m jumping the gun to consider the drastic measure. Frankly I am so confused. Doctor wants to do lumpectomy to ensure there is no cancer that might have been undetected in biopsy. Low chance I think, and so the waiting game continues…
I really like the breast surgeon I’m seeing now. Definitely I would recommend anyone switch if it’s not a good fit. I switched from an another doc whom I was not fond of his bed side manner and personality 10 years ago. I had gone in for nipple discharge and doc found that was found to not be a concern.
Anyone else talking to their doc about prophylactic mastectomy following ALH/LCIS diagnosis thus far? Thanks I’m advance!