I think I was in a somewhat similar position except I don't know how long ago the prostate removal was for your husband. Also, my PSA never got anywhere near that high just started to go up but the PET scan showed nothing.

My team sent me off to their radiation oncologist to start salvage radiation and hormone therapies. They radiated the "surgical bed" and the pelvic lymph nodes. My guess is this is likely next (or something very similar...)

The radiation finished about 5 mos ago now and the hormone therapy is scheduled to last another 18 mos. I may decide to end in a year, not sure yet. PSA at last test was <.006

Good luck to you and your husband!

Hello,
I had a RP a year ago, plus sample tests of eight-surrounding lymph nodes. Unfortunately, test results showed cancer in one test. The suggested follow up was 39 radiation treatments and hormone therapy shots for 24 months. I didn’t like the side effects from either treatment, nor did my wife. Instead, I opted to embrace a Mediterranean Diet and exercise. This wasn’t an easy decision: it was complex, as it for you. I’ve had my PSA checked every three months and will continue to closely monitor it and meet with my Oncologist.
Hope your husband can get off the hormone treatment and his PSA number remains stable. Good luck.

Hi @lindasteinkamp, I hope you saw the helpful posts from @web265 and . @jerryegge.

It sounds like your husband's cancer team is being thorough to continue with hormone therapy despite the PSMA-PET scan no showing cancer, but the PSA indicating otherwise. I think you'll be interested in this related discussion:
- Has anyone had the PSMA-PET scan? Was cancer found? https://connect.mayoclinic.org/discussion/psma-pet-technology/

@bandit11 @kujhawk1978 @natem @scullrower @bburg and @olanordman have experience with the newer PSMA-PET scan and can share more about what to expect.

How are you doing, Linda?