I just joined this group as I have been diagnosed with mesenteric panniculitis after suffering through a number of attacks since last year. I also have many other chronic health issues which only complicates the situation. I am a 62 year old female and I live in Michigan. I believe I am the only one in my health system in southeastern Michigan who has this disease so I am thinking I may have to travel to get help. The problem with travel is that it is expensive and it is challenging when one has many health issues. I would like to know if anyone in this group has the name of any doctors in Michigan who have experience in treating this illness.

I have read all of your posts and I wish to express that I am so sorry that you are all experiencing or have a close family member experiencing this horrible illness. Lisa S, from Oklahoma, I especially feel for you and for your daughter who has had so many surgeries and procedures at such a young age. I hope you have good luck with her future treatment so that she (and you)
can have quality of life.

I am shocked that this disease is as rare as it is and the treatments are so "hit and miss." There must be a reason that we are all on this journey together and I am hopeful that it is to find better treatment and cures.

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