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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: 5 days ago | Replies (1507)
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@lisas444

Hi Ron - i'm going to send you a private message on this page here. My daughter has sclerosing mesenteritis as well and diagnosed at age 14 and has 17 abdominal surgeries now with another one about to happen next month for multiple bowel obstructions and has also been on TPN off/on since 2008 and full time the last 2.5 years. We've been in Cleveland now for testing and evaluation for a bowel transplant to hopefully cure her of SM. We are in Tulsa, Oklahoma. We have an ever growing group with 207 members in it with people all over the US and several also from other countries all with SM or MP. We have a handful there in Florida that i'd love to put you in touch with. We have a good handful in our group with severe SM/MP and other are mild and some are in between and we've lost 3 in the past year with SM after their diagnosis. 🙂 My name is Lisa Schwartz in Tulsa, OK

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Replies to "Hi Ron - i'm going to send you a private message on this page here. My..."
ron22 | @ron22 | Jan 27, 2016

Hi Lisa,
Please send me the info. on the Florida contacts.  Thanks.

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franhertzog | @franhertzog | Feb 6 6:57am

Hello! I'm not sure if this thread is still going so many years later!
I was diagnosed with MP on CT scan last summer. My gastro didn't really seem to know anything about it and was taking his lead from the radiologist. I've had symptoms for about 8 years but have been bloated (look like I'm six months pregnant) every day for over two years now.
I had another CT scan last week to see if it's still there... seeing the consultant again next Tuesday.
If MP still present, I'd like to find a consultant who specialises in this condition. I'm based in the UK but will travel. Can you recommend anyone? Thank you!

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