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Proton Therapy travel and recommendation

Proton Beam Therapy | Last Active: Jun 20, 2023 | Replies (17)

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@colleenyoung

Welcome, @tshoss. Looks like you are on week 2 of proton beam radiation treatments. How are you doing? May I ask what type of cancer is being treated?

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Replies to "Welcome, @tshoss. Looks like you are on week 2 of proton beam radiation treatments. How are..."

Hi Coleen I have a tumor on my spine between L3 & L5 with an expandable cage in place of L4.
18 down 12 to go!

Hi Colleen
Im being treated for Chordoma cancer. I started Proton Therapy on Dec. 19 and finished up Jan 31st. (Sorry it took so long to get back to you). I’m doing ok, I asked my Oncology Dr. (Ivy) “how do we know its working?” And was told we won’t know until I come back in May for a follow up MRI, and Dr appointment. The therapist said I need to find a NEW Normal. And my surgeon who found the tumor said i might have nerve damage on my left side. (I had 3 surgeries in a 15 day period, and was home for a few days when the 1st surgery was infected. He fixed the infection but there was a small tear under the tumor. Someone in Rochester said “WOW it 3 times to get it right.” Sorry I’m rambling. I really want to find a book about “ finding my new normal”. Any Suggestion. Thanks for taking an interest. Tom