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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)

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@billymac65

Von:

Sorry to hear you are going through another bout. I seem to be the extremely fortunate as I have not had a recurrence in over four years now.

I know this is completely off beat, but along the lines of diet, I have be trying to juice as much as I can. It is a pain to keep the juicer clean and to make the juices, but I have to admit that I feel better when I do. I know it is likely only a placebo affect that I am feeling, but I will take it!!

When I was first sick, a friend referred me to the movie and web site http://www.fatsickandnearlydead.com. It is about an Australian with an auto-immune who juices and travels his way across America. Not sure the science is sound, but again, when you are feeling that crappy, you will try just about anything, and so I did.

My favorite juice is as follows: Kale, spinach, and Swiss chard with an apple, half a lemon, and some strawberries all over ice. It is green and gross looking, but tastes not half bad. I just visualize all those good ingredients running like an army to help my immune system!!

Lastly, I took the 23andMe.com test. It is very cool. They now have over a million people in their data base and are trying to help pharma companies find enough people with wierd stuff like we do to sift through our DNA to find cures. I think all of us with this auto-immune should take the test, then tell them we have, who we are, and try to get a scientist to start looking at our DNA for a genetic marker. Just a thought.

Bill

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Replies to "Von: Sorry to hear you are going through another bout. I seem to be the extremely..."

Hi Bill,<br />
<br />
I've also been green juicing and it makes a big difference. I prefer a mix<br />
of celery, spinach, cucumber, kale and carrot.<br />
<br />
Drew<br />

Bill<br />
<br />
Appreciate the support. I will keep the juicer in mind. Right now not eating much, just water and cottage cheese, soft breakfast bar. Not much appetite or energy but the pain does seem to be better. Trying to tough it out and not increase from the one 50mg Tramadol in the evening. No fever a big plus. Had blood test today for "everything" to see ?<br />
<br />
I will check out that site you mentioned. Glad to hear you are doing so well. We have to be thankful for all the good days and just get past the bad.<br />
<br />
Von