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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)Comment receiving replies
Hi. My name is Angela and I live in Australia. It has been 2-3 yrs since I last posted. I was diagnosed with M.P nearly 7 yrs ago and have had flare ups every 6 months. Some have been severe and I have had to be hospitalised for pain management but usually if I get on to Prednisolone early enough and take Oxycodone and Tramadol, I can manage it. I have a good doctor who has read up as much as possible on the illness but trusts me to know when I am having an attack which is usually confirmed by CT. It has now been 12 months since my last bout which was very severe and lasted longer than usual. In the early years I noticed that during an attack, eating meat brought about more pain so over the years I have developed an aversion to most meats and usually live on chicken and fish. I am beginning to think that this change in my diet is the result for me not getting an attack in line with the usual six monthly cycle that I have experienced in the past. Have any other sufferers changed their diet in this way and noticed any benefits.
Replies to "Hi. My name is Angela and I live in Australia. It has been 2-3 yrs since..."
Hi there,<br />
<br />
I was diagnosed and became symptomatic 3.5 years ago, and I could barely<br />
walk, had no appetite, couldn't sleep, but refused to take any drugs. I am<br />
aware that this disease is caused by various factors, but I had a suspicion<br />
that my outbreak was autoimmune related. I researched various diets, and<br />
did the Paleo autoimmune protocol. Initially for 6 weeks I was very<br />
strict, and then I added different foods into my diet. I lost about 20<br />
pounds in 6 weeks, and I wasn't too heavy to begin with. Now I go on the<br />
diet, but cheat regularly. When I cheat too much or too long my body let's<br />
me know as I start to feel cramps in my messentary. The diet has worked<br />
amazing well for me. I had high triglycerites, slightly high glucose,<br />
elevated liver enzymes, and low good cholesterol. Now all my blood work is<br />
perfect with no meds.<br />
<br />
My wife did the diet as well, because she had arthritis in her finger and<br />
couldn't even hold a pen. Now her finger is fine. I wish you all the best.<br />
<br />
take care,<br />
<br />
-- <br />
Doron<br />
Hi Angela here again.
Since my last conversation was barely posted I have gone down with another flare up and it is a really bad one. So my theory about not eating meat is not totally valid any more but maybe it helped in delaying the flare up. Well i will stick with the theory and hope it does help in reducing the times I have to put up with this awful condition.
Welcome back Angela. So sorry to hear that you were down with another flare-up, and a particularly bad one. Glad you're back.
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Hi Angela,<br />
<br />
Welcome back if I can say so. Good to hear you are coping and experiencing some encouraging improvement. Here in the U.S. we have a Steak House called "Outback" they wouldn't like your theory. <br />
<br />
I just started having a flare with abdominal distress, cramping and pain mostly on the left side going down to lower abdomen. I am going right into a soft mostly liquid diet trying to stay out of ER. It's been over a year for me. <br />
<br />
Anyway, just wanted to mention that I had just started adding more protein into my diet before this flare. I am diabetic so I was hoping to replace carbs with meat. I don't know if it is coincidental but I am certainly going to take note after your considering your remarks. My Doctor thinks I pulled something, imagine that. I will say he is a good Doctor.<br />
<br />
Hope it keeps working for you, maybe something for all of us. Keep us posted please.<br />
<br />
Von