Hi Gehres - and welcome that you found this page. We have 196 people in a private group and I just sent you an email to your email box on this page re: the info to find me and have me add you over. We have ages from 2 years of age through 80 in there from all over the US and several other countries represented as well. Hope to hear from you soon! Sorry you've been diagnosed with this crappy disease and hoping that you can get in under control soon! 🙂 My kiddo was 14 when she was diagnosed and has, unfortunately, many bowel obstructions from this SM disease and multiple abdominal surgeries as a result of this disease, etc. We've now been recently to Cleveland Clinic for evaluation for a bowel transplant and returning back up there in a few weeks for another surgery. We live in Tulsa, Oklahoma. Hers does NOT have an auto immune component to it and hoping that transplanting the bowel and mesentery that this will be the end to it for her (she's had multiple resections done). Her's is the extreme though - we have that group with ranging from mild to severe symptoms of people and have lost 3 in our group with it in the past year with SM that were severe as well. Most are not thankfully! 🙂 Hope to hear from you soon!

Lisa