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MRI MRCP - Cyst (IPMN) - Newbie

Pancreatic Cancer | Last Active: Mar 20 1:22pm | Replies (92)

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@frances007

Thank you for your question. Nothing has changed. A referral was sent multiple times to UC Davis for me to see a liver specialist there after I insisted on being sent there for further treatment. As luck would have it, two months have passed and UC Davis keeps telling me that they do not have the referral from Sutter Medical Foundation. In the meantime my doctor is running a variety of lab tests after I had a conversation with my former rheumatologist who I had remained friends with after her retirement, and who was sure that many of my issues were autoimmune in nature. Some tests have been returned which show a diagnosis of hypogammaglobulinmia. I see my doctor today and will find out more about this. I think he is waiting on one more test to finalize this diagnosis. In any event, I am pretty much in the same situation, and quite frankly, starting to lose interest in any future care for my medical problem. Not giving up, but perhaps giving in because getting any kind of solid diagnosis, or being seen by a liver specialist has become frustrating to say the least. I continue to have the most positive attitude that I can, and am remaining as active as I can as opposed to curling up in a ball and laying around all day. That's just not in my make up.

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Replies to "Thank you for your question. Nothing has changed. A referral was sent multiple times to UC..."

I appreciate your update, @frances007! I am sorry to hear that there is confusion about your doctor's referral being received by UC Davis. That must be very frustrating.

I am glad to hear that you are pursuing other avenues for autoimmune disorders. How wonderful that your rheumatologist is keeping in touch with you and offering suggestions.

I so admire your attitude. Will you post again when you have more information from your test results? I'm also wondering what kind of symptoms are you experiencing now? Any changes?