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@lucyhipp

I am as physical as possible but going swimming is not going to happen. I don’t have a car and depend on others for appointments. I also have calcific tendonosis in my R shoulder. It causes neuropathy and awful pain. Tylenol would not touch it. I tried it for 4 months. I was sent to pain management and take less than I am prescribed. The entire picture is a mess. I was never a candidate for Plaquenil but was given it for 4 months and I then I was told you have no other treatment options. Srogens foundation says otherwise so I went to U of Pa in a nearby State. She is insisting on a lip biopsy and my ENT who knows my hx of Gastroparesis and gastritis is going down to see my esophagus while I’m asleep tomorrow. Please don’t criticize me because I’ve been through hell with no treatment since August!

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Replies to "I am as physical as possible but going swimming is not going to happen. I don’t..."

Lucy — I am sorry you have those symptoms. I have had Sjögren’s for 30 years and have gotten help from good informed doctors. You can get better after a proper diagnosis.

For pain I take Tramadol is that okay?