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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)Comment receiving replies
Sounds like you had Hashimoto’s thyroiditis and burned your thyroid out. The progression of your TSH suggests that. Now you are hypothyroid. Not the end of the world . Have you heard of CREST. Sjogrens is only a part of the picture, hence SYNDROME. You may only have one of the pontentia Five but with your pain ,I would think there may be others going on, like joint inflammation. You need a good rheumatologist who will look at all of your sx. I personally would get off “pain killers”. The alternative acetaminophen, Tylenol. I knit till my thumbs scream at me. If you can walk or swim….get as physical as you can comfortably do. I am a nurse as well 1967 class. But I still cannot know your whole story.
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I am as physical as possible but going swimming is not going to happen. I don’t have a car and depend on others for appointments. I also have calcific tendonosis in my R shoulder. It causes neuropathy and awful pain. Tylenol would not touch it. I tried it for 4 months. I was sent to pain management and take less than I am prescribed. The entire picture is a mess. I was never a candidate for Plaquenil but was given it for 4 months and I then I was told you have no other treatment options. Srogens foundation says otherwise so I went to U of Pa in a nearby State. She is insisting on a lip biopsy and my ENT who knows my hx of Gastroparesis and gastritis is going down to see my esophagus while I’m asleep tomorrow. Please don’t criticize me because I’ve been through hell with no treatment since August!