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Proton radiation without the SpaceOAR gel

Prostate Cancer | Last Active: Jan 11, 2023 | Replies (2)

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@imbimbo

When you say it failed, what exactly do you mean? The gel takes six months to disolve completely. I had a bad experience with the space OAR also, I developed an infection in my rectal wall most likely caused by the urologist who inserted the gel. I did not get an answer as to the problem. I was scheduled to get proton therapy also but it was delayed because of the infection. The doctor indicated that I could start the treatments after the pus and blood disappeared from my stool but I declined as I lost all faith in the institution that did this to me. The doctor told me that inserting a baloon or reinserting the gel is not a good idea in that the rectal wall was irritated and he further stated that the gel is all marketing. That turned me off completely. I had a colonoscopy and they saw an ulcer and redness on the wall so I am not sure if I can get radiation at this point. The colonscopy was October, 2022 and the infection lasted until August, 2022. I am getting an MRI at the end of January to see what is going on with the cancer and will get a PSA also. I have looked into HIFU to kill the cancer as an alternative to these wonderful treatments. By the way, the gel and the fiducials were inserted June, 2022.

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@brentbackus (sorry, this was meant to be a comment to to OP)
Why not contact the manufacturer of SpaceOar and ask them the same questions? When it looked like I might have to postpone radiation at Mayo after I had the fiducials and SpaceOar inserted I was told that although it takes about 6 months for the SpaceOar to dissapate, its effectiveness is a much shorter time period than that. Also, the cost of the SpaceOar was about $11,500 and that I might have insurance problems having it redone. I wonder if that figures somehow into your doctor's calculations. It sounds like they have already done some damage. Perhaps you might consider a second opinion from a top hospital. Yes, SpaceOar does a lot of marketing. But, there is no question that it helps to protect the rectal wall from radiological burns. And, that can be more of a problem than prostate cancer.