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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)Comment receiving replies
I have it but had negative antibodies and my rheumatologist could care less about me because I’m suffering and choking on my food probably losing weight and in pain every where! Thursday I get a lip biopsy done by ENT. He may also stretch my esophagus. My name is Lucy.
Replies to "I have it but had negative antibodies and my rheumatologist could care less about me because..."
The esophageal stretching will probably help so much! It’s an easy procedure done during an EGD(scope.)
However, this is probably not caused by Sjogren’s. The lip biopsy should give you the answer.
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The problem with your esophagus is esophageal dysmotility. Believe me it is a real problem with Sjogren’s as Sjogrens is only one symptom of a possible five tiered syndrome CREST. C=. Calcinosis R = Raynauds E = esophageal dysmotility and you know the symptoms all too well S = syndactyly T= telectasia. Much of this is OLD INFO as the CREST is now known as limited scleroderma. I am going to look that one up and get re-educated.