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@tlw32

MP was an incidental find on CT scan while looking for kidney stone. Looking for any feedback. No drs in my area are experienced with this dx.

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Also interested in finding doctors in the NY Tri state area that specialize in this if they confirm this is what I have. My hospital seems to be clueless on it, other then the radiologist .

Eddie, please keep me updated. I am in very similar situation. I do not have confirmed diagnosis yet. I went to Rhematologist and GI .... had scopes...nothing significant presented. I am in Upstate Ny.