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Iron Depletion in Blood related to COVID?

Post-COVID Recovery & COVID-19 | Last Active: Jun 14 2:19pm | Replies (1057)
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@leelaguna

I developed Cold Agglutinin Disease shortly after receiving Covid Booster #1.
It may be related. I have since taken Booster #2. Then I came down with Covid. The Anemia caused by CAD plus post-Covid has wiped me out. I recently had a transfusion. I have no energy. Any suggestions?

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Replies to "I developed Cold Agglutinin Disease shortly after receiving Covid Booster #1. It may be related. I..."
av8r525 | @av8r525 | Dec 27, 2022

Stop taking boosters for starters.

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Lori, Volunteer Mentor | @loribmt | Dec 28, 2022

Hi @leelaguna, you’re trying to connect with other members who share your diagnosis of Cold Agglutinin Disease (CAD) This is a rather rare autoimmune condition according to the National Institute of Health. https://rarediseases.info.nih.gov/diseases/6130/cold-agglutinin-disease

I found another member, @hi2l, in our forum who also has CAD along with other comorbidities and has several replies in various groups regarding their treatment. Here are a few of the conversation links to introduce you to @hi2l

-Does it seem like autoimmune diseases are on the rise?
https://connect.mayoclinic.org/comment/643601/

-Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
https://connect.mayoclinic.org/comment/697357/

-MGUS associated with Type I Cryoglobulinemia
https://connect.mayoclinic.org/comment/665531/

Are you being treated with any medications to help with the anemia besides the transfusion?

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coldagglutinin01 | @coldagglutinin01 | Feb 7, 2023

Hi ,
I also have cold Agglutinin disease.
There is a fantastic support group on Facebook for many of your questions and answers. Caddy chatter. Do you have a hematologist, oncologist you get your blood checked with regularly ? Also check your iron, ferritin . Having low hemoglobin makes you exhausted. So , there are various treat to raise your hemoglobin if your blood transfusion aren’t working. I am happy to help you find more answers to this rare disease .

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