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BillyMac65 (@billymac65)

Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: 2 days ago | Replies (1398)

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@lisas444

Bill: This is not necessarily an auto-immune disease. It can be attributed to it BUT it also can happen from abdominal trauma, peritonitis, sepsis, etc., multiple abdominal surgeries, etc. There are different stages with it. We have a great group with ages ranging from 17 months old to 70 years old and approx 85 in our group – with many being in their 20-40’s. My daughter was 14. Have they done a biopsy yet? Diagnosed with scans? CT? Biopsy? please feel free to PM me.

Lisa

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Replies to "Bill: This is not necessarily an auto-immune disease. It can be attributed to it BUT it..."

Hi Lisa, I had a Gastro tell me the other day that it was caused because my type 2 diabetes was borderline out of control, A1C of 7. Ever hear this from anyone? I’m not sure if I believe it.
Von

Just so people can see this when coming here – but as of 8/12/15 – we now have 124 in our support group all with SM and/or MP. Contact me for info if you’re interested and I can get your info and get you added in! We’re about to be listed with NORD shortly as well. Thx. Lisa (mom of kiddo with SM diag. age 14 and now age 22)

Hey Lisa, you mean the group is? How soon do you think that will happen? My ssa hearing is on sept 18th and it couldn’t hurt to show the alj that!! Hope you and ms Mac are doing okay! Wish me luck on my hearing! I’m just on pain meds now, fentanyl 25 and hi singla 30.(straight time release hydrocodone.
Mark

Mark – yes, our group over there with be listed with NORD shortly.  Finishing up with what i need to do for them!  🙂  Lisa

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