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Feedback on Linzess for Irritable Bowel-C or Chronic Constipation
Digestive Health | Last Active: Apr 14 6:19am | Replies (147)Comment receiving replies
I tried Linzess for a couple weeks, but I couldn't leave the house! It didn't do anything the first few days, and then after that gave me entirely unpredictable loose BMs on about 20 seconds notice. My GI doc switched me to Trulance (also expensive) and that worked for about a year--I had about 2 hours of gurgling and cramping as advance notice to be near a toilet. Now I take good old Miralax once or twice a day.
My chronic constipation problem is caused by slow transit. It's not that I don't have BMs without help, but that even though I may have 6 or more in a day they are too small to keep up.
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When i first Linzess I had horrible diarrhea. I ended up in the hospital with dehydration the week of daughter's wedding. If you keep taking Linzess the diarrhea will get better. Then it stopped working so now I add other stimulants. Prunella (?) somebody mentioned which is good. Trying to figure the best thing to do with colonic inertia. Colace with Senna etc etc. Every where I look on line says "NO" to total colectomy with or without ileostomy. Mine would be with ileostomy. My gastroenterologist "dismissed" because he said I need the surgery.
Any health provider that is gastro, urogynecologist, will say surgery from my experience in Florida. My internal medicine doctor (who referred me to gastro) was shocked, as well as my pelvic floor therapist and myofacial release provider.