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Ascending aortic aneurysm with connective tissue disorder
Aortic Aneurysms | Last Active: Jan 8, 2023 | Replies (10)Comment receiving replies
Hello @wyomingmiller208,
I want to welcome you to Mayo Connect. I can understand your concern in wanting to find others who are also dealing with this diagnosis. Your doctor was very discerning in keeping you in the office until your blood pressure came down.
We have several discussions on this topic.
==Stress Management, High BP and Aortic Aneurisms, What We Can Do and Not Do
https://connect.mayoclinic.org/discussion/stress-management-high-blood-pressure-and-aortic-aneurisms/?commentsorder=newest#chv4-comment-stream-header
--Ascending Aortic Aneurysm and Exercise
https://connect.mayoclinic.org/discussion/ascending-aortic-aneurysm-and-exercise/
Also,
--Connective Tissue Disorder
https://connect.mayoclinic.org/discussion/mctd-mixed-connective-tissue-disease/?pg=3#comment-56453
As you read through these discussion groups you can ask questions and get more information by hitting "Reply" and then responding to the member who posted.
You are asking good questions. Is your doctor giving you answers on restrictions related to exercise?
Replies to "Hello @wyomingmiller208, I want to welcome you to Mayo Connect. I can understand your concern in..."
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My doctors have been very helpful. My concern is that no one seems to be able to diagnose the connective tissue disorder. They only agree that the sheer number of surgeries and ruptures isn’t normal. I fear that the underlying problem will increase my chance of dissection. I have limited myself on much exercise at all since three of the major events have been during very modest exercise activity. Thank you for your efforts to steer me in the right direction.