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My first sudden facial flush since NETs surgery
Neuroendocrine Tumors (NETs) | Last Active: Dec 26, 2022 | Replies (10)Comment receiving replies
Yes....I was just recently diagnosed with carcinoid syndrome....I'm scared to death and my mom who is my best friend in the world passed away two days ago....I'm devastated about both ...my God what am I to do
Replies to "Yes....I was just recently diagnosed with carcinoid syndrome....I'm scared to death and my mom who is..."
Hello @kristykelly71
I would like to welcome you to Connect. You have been through a great deal of stress. Your mom's death and now these uncomfortable health issues. You say that your "health insurance is the worst." Has the insurance company denied testing or other diagnostic work? If so, there is usually a way to appeal denials.
As you were diagnosed with carcinoid syndrome, I'm wondering where the carcinoid lesions/tumors are located. Have you had a PET Scan to determine where the primary carcinoid lesion is located?
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Kristy, this must be really tough facing such a diagnosis without your mom. You must miss her terribly. It’s all so new. Feel free to join the Loss & Grief support group if you like. Just click here: https://connect.mayoclinic.org/group/loss-grief/
Let me introduce you to Teresa @hopeful33250, she understands both loss and carcinoid syndrome and can help connect you with support, like the monthly Zoom support group hosted by Mayo Clinic and other members who have a similar diagnosis.
Can you tell me a bit more about your diagnosis? When were you diagnosed? Where was it found in your body? Do you have a treatment plan? Have you started treatment?