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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)Comment receiving replies
yes but the drugs used for Sjogrens aren't the best as there is so little research into autoimmune diseases..
Do you have it too!?
Replies to "yes but the drugs used for Sjogrens aren't the best as there is so little research..."
Yes and it is not pleasant disease process Mine localized to mouth and tooth loss related to severe dry mouth gum recession.
The most helpful is the usual dry mouth over the counter lozenges ( oxy melts) and a bit of coconut oil at interval during the night.
My recipe for “Mary’s magic mouth wash” counters the chronic yeast/ inflammation caused by lack of saliva. Recipe as follows….60 ml Nystatin, 180 ml Benadryl elixir,60 mg hydrocortisone, and 1500 mg tetracycline……1/4 to 1/2 tsp orally …. swish and hold and spit. Sometimes it will last all night long.
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I have it but had negative antibodies and my rheumatologist could care less about me because I’m suffering and choking on my food probably losing weight and in pain every where! Thursday I get a lip biopsy done by ENT. He may also stretch my esophagus. My name is Lucy.