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Peripheral Neuropathy and benign fasciculation syndrome.
Neuropathy | Last Active: Mar 6 11:38pm | Replies (101)Comment receiving replies
i also have extensive fasciculations primarily focused in my arms but routinely felt in my legs as well. numbness and also muscle pain in my arms. I have severe stenosis and ddd in my c5/c6 as well. Curious where you had your surgery done and if it helped 100%. were your symptoms similar to mine? unfortunately most of the neuros ive spoken to have NOT suggested surgery due to potential risks of cervical spine surgery. ive had numerous clean EMGs to confirm its not ALS ot NMD. The last EMG was done at Mayo last week. im hoping the stenosis is source of my issue as well.
Replies to "i also have extensive fasciculations primarily focused in my arms but routinely felt in my legs..."
@josed10 Thank you for asking. Yes, having surgery at Mayo in Rochester resolved all of the symptoms I had from spinal cord compression which were basically the same as yours. I did not have any foraminal stenosis, just compression of the cervical spinal cord. I did have some muscle loss on the back of my shoulders due to atrophy, and I have gotten some back (about 1/2), and I have a reasonable level of strength and I can lift 50 lb bags of horse feed with some difficulty, so I can't complain.
It's great that you've been evaluated at Mayo. Did your neurologist refer you to a spine surgeon there for further evaluations? Some times neurologists and neurosurgeons have differing opinions when they read imaging. My neurologist wasn't sure surgery would be recommended, but the neurosurgeon recommended it and t was the right thing to do. I am so glad I did this surgery. Here is my story:
https://newsnetwork.mayoclinic.org/discussion/using-the-art-of-medicine-to-overcome-fear-of-surgery/
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I wish I could have you see my spine surgeon but I live in California. Good luck. I hope you find some relief.