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Tongue Cancer: What are my treatment options?

Head & Neck Cancer | Last Active: Apr 27 12:04pm | Replies (93)

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@anybody10

I appreciate all of the helpful info on what to expect. I do hope your husband's cancer does not return. Did he have surgery to remove part of his tongue? That is one of my biggest fears. Does the chemoradiation cause any problems with speech and taste?

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Replies to "I appreciate all of the helpful info on what to expect. I do hope your husband's..."

My speech is slurred and it is still difficult to swallow most foods after being 6 years out. My epiglottis is barely functioning which causes aspiration so I really need to be careful when eating and prefer to eat solids only when my wife is home.
Also, the treatments were as strong as they could give me so I am left with tinnitus, migraines, stiff neck, weakness and brain fog.
Though I’m not like I use to be I’m still alive!

No surgery. He underwent 35 rounds of radiation. Because of his age, cisplatin (chemo) was not recommended. His speech has not been affected but he did lose his taste very early in his radiation treatment. He was told that he would eventually regain his sense of taste. His neck wounds post treatment are worse now than during treatment. (he is one week after last radiation as I write this) We were also told that this would happen for 2 weeks post treatment, so we weren’t alarmed. Keep doing everything your team is recommending, and with a lot of hope and prayers, everything will work out. Stay strong!