When I was first diagnosed, I had a 1.1 CM cavity. My first two doctors recommended not to treat. Then I went to National Jewish Health for a third opinion, and they recommended treatment. By that point, my cavity had grown to 2.2 CM. Per NJH recommendation, I started airway clearance, but had to postpone Big 3 treatment because of the pandemic. Fortunately, my cavity remained stable (somewhat shrinking). I believe this was a function of my saline/nebbing routine. Also, my bacterial colony count dropped dramatically.

Since going on the Big 3 and Arikayce, my cavity has collapsed and turned opaque. It is now a calcified clump of scar tissue, which is a good thing as there is no chance of it turning back into a cavity . The clump is down to 1.1 CM and shrinking and I have tested negative for several months in a row (since adding Arikayce to the Big 3). The treatment has also been virtually side effect free for me, other than intermittent hoarseness.

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