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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)

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@glendy

Only needed a biopsy on the original breast. The other spot was gone, PG! Now waiting to see if it is the same type of cancer. It is right next to the other one. Invasive Lobular Carcinoma...Hate the word Invasive but I guess that's why another spot showed up! Surgery still January 5th, just not sure what kind. Everyone is telling me to go ahead and have the whole breast removed. I'm kinda leaning towards that, will see what the Dr suggests.

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Replies to "Only needed a biopsy on the original breast. The other spot was gone, PG! Now waiting..."

Glendy,
I’m navigating similar waters as you. I just got biopsy results today. Atypical lobular hyperplasia bordering on lobular carcinoma in situ in a background of slightly fibrotic breast tissue. Negative for atypical ductal hyperplasia, DCIS or invasive carcinoma.

Pathology is high risk and concordant. Breast surgical consultation is advised.

Breast specialist wants to do lumpectomy but I don’t want to face this potential ugly beast down the road. I’m putting serious thoughts on prophylactic mastectomy. I had genetic testing 1.5 years ago which revealed check 2 gene mutation making me high risk breast cancer. I also have had 10+ years of nipple discharge which was tested and deemed non-problematic. I wonder if this little nugget has been with me a while?! I’m a realist…I want to be strong and make wise decisions that are not alarmist, but make sense with my situation. I have just found this forum while researching today. I’m happy to mesh information with people sharing the same worries and situations as me.