Hello @queensmom,

I'm glad that you posted an update. It is good that the doctor at Dana Faber did not view your NET history with great concern. It is only natural to worry, though. I do understand that. It sounds as if she is basing her follow up recommendations on the fact that your NET was grade 1. It is true that patients with NETs can live a very long time. I suppose your comfort level is what is important now.

It appears that you will have a follow up MRI in March and then one year later. If you feel uncomfortable with this type of follow up, it would be good to discuss it further.

Once you get through the second MRI and if there are no new NETs showing up, you can then decide how comfortable you are waiting 10 years. If you develop any symptoms or if there are other changes you should certainly look into the possibility of testing.

What type of symptoms were you having prior to your surgery in November? Have you had any symptoms since then?