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@riffieli

I had my first surgery 8 months ago. My Oncologist was busy so I spoke to a nurse practitioner that I didn’t even know. I basically told her what it is. It is disaster!! Then after I told her she spoke to the dr called me back and said your Dr ordered an MRI of liver and right hip. So waiting to do that next Thursday. But in the mean time I’m trying to get answers. Btw I appreciate you responding

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Replies to "I had my first surgery 8 months ago. My Oncologist was busy so I spoke to..."

I completely understand your frustration over the lack of knowledge about these tumors. My husbands local oncologist did not understand basic facts about diagnosis and treatment of them. Fortunately, there is a nearby university hospital takes the time to work with us and determine next best steps; he is scheduled for surgery soon. His is a nonfunctional pancreatic NET.