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Anyone have experience with gastrointestinal stromal tumor (GIST)?

Sarcoma | Last Active: Dec 15, 2023 | Replies (51)
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@mizamymac

Thank you for asking. PET scan was 7 days ago. I am have an appointment with surgeon in about 3 weeks.
I feel kind of lost. The test results are posted to my account, but that does not mean I don’t have lots of questions. I would go somewhere for another opinion, but have no idea how to do that.
As far as I can tell from reading my PET scan, my GIST has not metastasized and may be on my stomach. Doc here said that the PET would show the size, but I can’t find that on the report.

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Replies to "Thank you for asking. PET scan was 7 days ago. I am have an appointment with..."
Colleen Young, Connect Director | @colleenyoung | Dec 23, 2022

I can imagine you feel a bit lost. Hopefully you'll be celebrating the holidays with family to help pass the time more quickly until you meet with the surgeon.

If you wish to seek a second opinion at Mayo Clinic, you'll find all the info you need to get started here: http://mayocl.in/1mtmR63

Have you started writing down your questions? What will you ask your doc?

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