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@gardenlady1116

I have BRCA 1 as does my sister, 2 years younger than myself. Looking for information on screening protocols and also insurance coverage for screening. I see that the options seem to be endoscopic sonogram and MRCP as well as testing for CA 19-9 and there are trials on the optimal screening protocols.

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Replies to "I have BRCA 1 as does my sister, 2 years younger than myself. Looking for information..."

To locate clinical studies for screening/surveillance that are currently recruiting, contact the Patient Central group of the Pancreatic Cancer Action Network (PanCan.org) at 1.877.272.6226, M-F, 7:00am-5:00pm PT. They will close for the holidays from 12/22 and reopen on 1/2. PanCan has a clinical trial finder service in association with CancerCommons.org. Both staffs will do searches free of charge based on information you provide and criteria you specify.