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@johnbishop

Hello @suzig, Welcome to Connect. I'm so sorry you have pain with your lymphedema. I have lymphedema in my legs and have to wear compression socks daily as the treatment. They help control the swelling and even though they are not painful, I always feel the squeezing on my legs and it's a relief to take them off at bedtime. Another thing I do is elevate my legs slightly on the bed at night which helps the lymph system get the fluids out of the system. Exercise along with drinking a lot of water also helps the system from what I've read.

There is an older discussion that has a few members still active that you might want to view to learn what others have shared here:
-- Lower limb lymphedema: https://connect.mayoclinic.org/discussion/lypmhedema/

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Replies to "Hello @suzig, Welcome to Connect. I'm so sorry you have pain with your lymphedema. I have..."

John,
Thanks for your understanding and support. I wonder if some of the pain is not from the lymphedema because I get sharp pain all the way to my ankle. The trobbing and needles never really go away. The sharp pain is in different places and for no reason that I can identify. I elevate my leggs as much as possible. I am a "couch puddle" instead of just a couch potatoe. May try to get another appointment to see what's going on. Thanks again.
Suzi