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@suzig

I'm looking for any advice for lymphedema in my right foot and leg. After 6 surgeries on my toe, and having it fused because there was bone on bone, the lymph glands are damaged. The sugeon and PT are very good, but they say the lymphedema may never go away. I have a few moments a day that I am not in too much pain, but that's not for long. I have a pump and leg sleeves on order, to use for the next five years. This is cronic and can cause cancer if untreated. Naprosyn helps just enough to let me walk, but I hate that no one can understand how much it hurts. You all have pain as bad or worse and I'm thankful that I have my legs. GOD is my strength. How do I do better? Thank you all.

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Replies to "I'm looking for any advice for lymphedema in my right foot and leg. After 6 surgeries..."

Hello @suzig, Welcome to Connect. I'm so sorry you have pain with your lymphedema. I have lymphedema in my legs and have to wear compression socks daily as the treatment. They help control the swelling and even though they are not painful, I always feel the squeezing on my legs and it's a relief to take them off at bedtime. Another thing I do is elevate my legs slightly on the bed at night which helps the lymph system get the fluids out of the system. Exercise along with drinking a lot of water also helps the system from what I've read.

There is an older discussion that has a few members still active that you might want to view to learn what others have shared here:
-- Lower limb lymphedema: https://connect.mayoclinic.org/discussion/lypmhedema/