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Tarlov Cyst on the spine: Any advice?

Spine Health | Last Active: Oct 21 8:17am | Replies (173)

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@grammyof5

I have MS and fibromyalgia. I've had excruciating pain running down my left butt cheek down to my toes. Thought it was my ciatic nerve. My pain Dr sent me for an MRI, with contrast. Came back as consistent with Tarlov syndrome. Next visit I asked my Dr what can be done and he said that they can be popped, removed, whatever, but "HE" wasn't concerned about that right now. I said "I am. I'm in alot of pain here. Can't put any pressure on my left side, can't sit, can't sleep, etc. " That was almost a year ago. Now it's starting on my right side. Can you get it on both sides at the same time?

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Replies to "I have MS and fibromyalgia. I've had excruciating pain running down my left butt cheek down..."

Hello @grammyof5 and welcome to Mayo Clinic Connect. I am so sorry to hear of your pain and that you haven't felt heard with regard to your pain. Members such as @francesmharris123 and @kennoct may be able to help support you.

Do you think this warrants a second opinion to make sure the treatment plan is what you feel comfortable with?